Thursday, April 14, 2011
HMOs win in Medicaid bill; the sick, trial lawyers lose - Florida - MiamiHerald.com
HMOs win in Medicaid bill; the sick, trial lawyers lose - Florida - MiamiHerald.com Join the ADA Expertise Listserv. Write to mdubin@pobox.com or send a tweet to @ADAexpertise.On Facebook? Join us at ADAexpertise.
Wednesday, April 13, 2011
Important Information About Children with Pre-existing Medical Conditions
The new health law, the Affordable Care Act, requires insurance companies to now cover children with pre-existing conditions. Here is a link to the government website that describes new help for people with disabilities under the ACA including a navigation system to help find public and private coverage.
Sincerely,
Laura Goodhue
Executive Director
Florida CHAIN
Executive Director
Florida CHAIN
561-972-4090 office
954-213-8647 cell
561-972-4087 fax
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Tuesday, April 12, 2011
Learning How to Communicate with Someone Suffering From Alzheimer's Disease
As I thought about this I came to a simple conclusion. Instead of trying to change Alzheimer's World, instead of trying to fight Alzheimer's World, not only would I accept Alzheimer's World as a reality, I would go into Alzheimer's World and learn how to communicate effectively...By Bob DeMarco
Alzheimer's Reading Room
Earlier today, Carole Larkin published an interesting article -- How the Loss of Memory Works in Alzheimer’s Disease, and How Understanding This Could Help You.
The article described in layman's terms how problems with short term memory are directly related to the region of the brain known as the hippocampus; and, how when this brain region stops functioning properly a person losses their ability to store information.
A person suffering from Alzheimer's disease can hear you and even respond to you. What they can't do is remember what the hell you just said. Well, in layman's terms anyway.
I grappled with this problem several years ago as I was constructing my own understanding of how Dotty was thinking (or not thinking) and feeling. I named the parallel universe that Dotty lives in -- Alzheimer's World.
To continue reading go here -- Learning How to Communicate with Someone Suffering From Alzheimer's Disease
Sunday, April 10, 2011
Management Of Chronic Disabilities Online Radio by IFCD | Blog Talk Radio
Management Of Chronic Disabilities Online Radio by IFCD Blog Talk Radio To apply to join, or to send comments and suggestions, contact Marc Dubin, Esq., Chair, at mdubin@pobox.com or at 305 896 3000.
Thursday, April 7, 2011
Is Governor Scott Really Without Shame? Is Florida Really Without Pride?
Is Governor Scott Really Without Shame? Is Florida Really Without Pride?
by Tallahassee Autism Support Coalition, Inc. on Wednesday, April 6, 2011 at 9:13pm
Dear Editor:
My name is Jarl K. Jackson, a person with Asperger's Syndrome, an autism spectrum disorder and the founder, president and chair of the Tallahassee Autism Support Coalition, Inc. As such - as an autism self-advocate - I was down at the Capitol on Wednesday, April 6, 2011 for the 'Rally in Tally.' This event was inspired by the "emergency cuts" made by our esteemed Governor, Rick Scott to the Medicaid Home & Consumer Based ServicesWaiver Program.
The Home and Community Based Services Waiver is program that provides community services to individuals as an alternative to services provided in an institution. This allows recipients to live as independently as possible and gives them the opportunity to be as much fully-contributing citizens as possible in all areas of life, including gaiful employment.
Instead, reciepients now appear headed for a re-institutionalization which will profit a few businesses and cost the state far more than what the current program does. Thus, it will further hurt the most vulnerable in Florida, including its economy.
As many of you no doubt recall, when,in the past, cuts have had to be made in the current budget, the legislature has held a special session. They have done so because that is the constitutional way to do so.Now, in addition to cuts already being debated by the legislature for the upcoming fiscal year, Governor Scott has unilaterally made so-called "emergency cuts"
Inspired - or driven - by this act of the Governor, the 'Rally in Tally' was born. This near-spontaneous event was made up of many, many self- and parent advocates and headed up (no doubt among others) by the Autism Society of Florida and WaiverInfo.org. In any case, Ven Sequenzia and Aaron Nangle, who head up those two organizations, were very much in the lead - but I don't want to deny credit to the many, many other self-, parent and provider advocates, who are all leaders in their own right!
I was proud to stand with them and furious at the way all of us were treated. After the rally, many of us went to the Governor's office, asking for the chance to speak to a senior staff member about our concerns. Held up for hours, we were finally told that Mr. Sequenzia and Mr. Nangle would be allowed to speak with to an assistant to the Governor's press secretary, or some such person - but then they (and we) were made to wait even longer for that! We didn't expect to see the Governor; he was out of town. But to simply be treated with respect and acknowledged... how much does that cost the state?
The substance of that meeting, such as it was, was lacking. Nothing promised but talk, while cuts go into effect, waiver reciepients lose jobs and independence, their service providers lose funding and have to lay off employees - this from a governor who promised to create jobs - and individuals and families face new and greater hardships, while friends and communities struggle to help out.
Do not think that the providers were making out well before. Many are not-for-profit, earn already low-wage-an-hour incomes. They are dedicated people, who truly love their work and care deeply for their clients. However, if you are struggling to survive yourself, how are you supposed to help another do so? And for many waiver reciepients, it is the difference between surviving and not surviving. The cuts are like a measure of the value of human lives!
If the governor's staffers could offer little in the way of substance, what did have substance was the resolve of self, parent and provider advocates to continue the fight. And that is where you come in. We are asking you, our fellow citizens of Florida, to first become informed about this issue. Then, we ask you to get more involved in looking out for and supporting your neighbors and fellow community members, especially the most vulnerable and particularly the many, many individuals and families living with all varieties of disabilitie. This would include not only those receiving support through the now-reduced Waiver, but also those who have been on the waiting list to receive such services, often for years and those who were never eligible - such as myself.
What services even people like me get are also being cut and reduced. Our waiting list consists of how long we wait to be served, to be acknowledged. Our cuts are in what little helps to keeps us going just where and how we are, like the wonderful people who run the Centers for Autism and Related Disabilities (CARD) throughout the state.
There are many such people working in government and in the communities throughout that state. There are many more wonderful people out there as well. You know who you are. Why not join us?
If you are interested, or just simply want more information, feel free to contact me at the following:
Jarl K. Jackson
110 North Adams Street
(850) 412-0141
Tallahassee, Florida 32301 are also on Facebook. Search: Tallahassee Autism Support Coalition, Inc.
And on Blogger. http://tasc-connect.blogspot.com/
I will do everything I can to answer your questions and respond to your comments. And if I can't help you, I will refer you to someone who can - not simply brush you off like myself and others have been!
Again, join with us! We do not ask to held, carried, or borne along, only respected, appreciated and allowed the chance to flourish!
Isn't that the American Dream? We are all Americans, let us all dream big. Let us dream and make it so!
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Disabled lose care statewide thanks to spending cuts | FLORIDA TODAY | floridatoday.com
Disabled lose care statewide thanks to spending cuts FLORIDA TODAY floridatoday.com Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Wednesday, April 6, 2011
Disabled advocates protest Rick Scott’s big cuts - Florida - MiamiHerald.com
Disabled advocates protest Rick Scott’s big cuts - Florida - MiamiHerald.com Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Tuesday, April 5, 2011
Waiting List Information, from NoEwait.net
PO Box 411 • Parker, CO 80134 noewait@noewait.net • www.noewait.net
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Hundreds of Thousands of People with Disabilities and their Families Across the United States Wait for Help.
The problem:
Each day 300,000+ (reported by advocacy organizations) children and adults with intellectual and developmental disabilities, cerebral palsy, autism, Down Syndrome and related conditions and their families - in almost every state – go without services such as therapy, personal care and community supports. Most wait for years to get help. These individuals and families are also shackled to their own state, because, no matter where they are on their own state’s waitlist (or even if they are receiving services), they must start all over again in the new state.
The causes:
Waitlists are growing because of inadequate state and federal funding, the lack of a coherent and inclusive national policy and laws to entitle services and portability of services from state-to-state, and also the increased longevity of individuals with developmental disabilities.
The effects:
Waitlists are devastating. Individuals with disabilities who received training and education in the public schools lose the skills they acquired. Also physical mobility and speech improvements gained through school-based therapies are diminished or lost altogether.
Thousands, who with proper training and support, could be employed and be paying taxes, are not.
Families are relegated to a destitute status. Single-parent-families become full-time caregivers, dependent upon social programs for their income.
Families are pulled apart and exhausted by the intense years of often providing 24/7 care
Military families and others who seek or need to maintain employment must reject assignments and potential jobs and advancement because services are not available without going through the waitlists of other states.
The solutions:
National laws should be enacted that entitle people with disabilities to services in each and every state, allowing an individual to find adequate services no matter where they live or move. This will require adequate levels of funding.
How do we get there?
Citizenry
, leaders, elected officials and others need to be educated and galvanized to action by any and all means possible to pass state and national laws, policies and guidelines to end waitlists and provide portability of services. NOEWAIT’s mission is:
"
To unite efforts of families, self-advocates, advocates providers, government and citizens to change laws and policies across the country to eliminate waitlists for people with intellectual and developmental disabilities."We need your help. Contact
Noewait@noewait.net. Web page http://www.noewait.net/ NO WAIT, NO BOUNDARIES Services when we need them, where we need themJoin our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
About Waiting Lists
http://noewait.blogspot.com/p/about-waiting-lists.html
Until the 1960’s, people with developmental disabilities received services in large institutions or their family provided care with little in the way of government support. Class action law suits and intense scrutiny of the horrifying conditions in institutions led to public outcry and change. The Community Mental Health Act of 1963 began the deinstitutionalization of people with developmental disabilities (and mental health issues). Medicaid was created in 1965 to provide care for this population and others. In 1972, Title XIX of Medicaid program added a new benefit called Intermediate Care Facilities (ICF/MR) Most ICF’s are large congregate care facilities focused on intensive medical or behavioral intervention, and they are both public and privately operated. The Americans With Disabilities Act of 1990 contained an 'integration mandate' that requires public agencies to provide services "in the most integrated setting appropriate to the needs of qualified individuals with disabilities." In 1999, the Olmstead decision of the Supreme Court upheld the ADA’s integration mandate when the state of Georgia appealed to enforce institutionalization.
Approximately 4 million Americans have developmental disabilities. These individuals attend school, usually until they are 21 years old. At that point, they move into the adult services category and should receive services through “Home and Community-based Waivers.” Because Waivers are not an entitlement, in almost all states they are not fully funded to meet the need and involve variations in the types and intensity of services and supports that are offered. This results in waiting lists and lack of portability of services from one state to another and one county to another. The time periods people can be left waiting for help obtaining job services, a community-based program, or a secure home in which to live can be anywhere from five to twenty years long, depending upon the state and the type of service needed.
Tens of thousands of people are on waiting lists for Waiver services. Few families can afford to pay out-of-pocket for these services (an average of $35,000 - $75,000) per year for host or group home placements because parents have had to leave careers to care for their children and pay for large medical bills.
The result of this lack of access to services is that people with developmental disabilities sit at home with their parents with nothing to do and nowhere to go. Most often one of their parents must leave their employment to stay at home to take care of them. And as the parents age, older adults with disabilities – especially those in the “baby boom” generation often have no one to care for them and the entire family is in crisis. We know many parents in their 70’s and 80’s needing care themselves who continue to care-give for their sons and daughters in very difficult situations. There are many cases where parents have passed away, leaving their adult child without a place to live. In cases where parents have found their adult children cannot be managed at home because of severe behavioral issues, or physical problems – they, too, wait for disaster to strike. When these families do not even have access to long-term care for their loved ones or choices for that care near their homes, the rights of these individuals are denied. Families are even unable to move to other states or counties to accept better jobs, for example, because the price they may pay for doing so would be that their adult child will lose all of their services and go to the end of the line in their new state home. Parents and sometimes siblings who have been left to care for these individuals are strained to their limits – having to advocate daily in their communities, through their legislators and others just to obtain these basic human services.
Essentially, were have regressed back to the 1960’s, when parents and families had no support in taking care of their loved ones with developmental disabilities.
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Until the 1960’s, people with developmental disabilities received services in large institutions or their family provided care with little in the way of government support. Class action law suits and intense scrutiny of the horrifying conditions in institutions led to public outcry and change. The Community Mental Health Act of 1963 began the deinstitutionalization of people with developmental disabilities (and mental health issues). Medicaid was created in 1965 to provide care for this population and others. In 1972, Title XIX of Medicaid program added a new benefit called Intermediate Care Facilities (ICF/MR) Most ICF’s are large congregate care facilities focused on intensive medical or behavioral intervention, and they are both public and privately operated. The Americans With Disabilities Act of 1990 contained an 'integration mandate' that requires public agencies to provide services "in the most integrated setting appropriate to the needs of qualified individuals with disabilities." In 1999, the Olmstead decision of the Supreme Court upheld the ADA’s integration mandate when the state of Georgia appealed to enforce institutionalization.
Approximately 4 million Americans have developmental disabilities. These individuals attend school, usually until they are 21 years old. At that point, they move into the adult services category and should receive services through “Home and Community-based Waivers.” Because Waivers are not an entitlement, in almost all states they are not fully funded to meet the need and involve variations in the types and intensity of services and supports that are offered. This results in waiting lists and lack of portability of services from one state to another and one county to another. The time periods people can be left waiting for help obtaining job services, a community-based program, or a secure home in which to live can be anywhere from five to twenty years long, depending upon the state and the type of service needed.
Tens of thousands of people are on waiting lists for Waiver services. Few families can afford to pay out-of-pocket for these services (an average of $35,000 - $75,000) per year for host or group home placements because parents have had to leave careers to care for their children and pay for large medical bills.
The result of this lack of access to services is that people with developmental disabilities sit at home with their parents with nothing to do and nowhere to go. Most often one of their parents must leave their employment to stay at home to take care of them. And as the parents age, older adults with disabilities – especially those in the “baby boom” generation often have no one to care for them and the entire family is in crisis. We know many parents in their 70’s and 80’s needing care themselves who continue to care-give for their sons and daughters in very difficult situations. There are many cases where parents have passed away, leaving their adult child without a place to live. In cases where parents have found their adult children cannot be managed at home because of severe behavioral issues, or physical problems – they, too, wait for disaster to strike. When these families do not even have access to long-term care for their loved ones or choices for that care near their homes, the rights of these individuals are denied. Families are even unable to move to other states or counties to accept better jobs, for example, because the price they may pay for doing so would be that their adult child will lose all of their services and go to the end of the line in their new state home. Parents and sometimes siblings who have been left to care for these individuals are strained to their limits – having to advocate daily in their communities, through their legislators and others just to obtain these basic human services.
Essentially, were have regressed back to the 1960’s, when parents and families had no support in taking care of their loved ones with developmental disabilities.
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Monday, April 4, 2011
Sun Sentinel Article on Medicaid Cuts
http://www.sun-sentinel.com/health/fl-hk-state-health-cuts-20110404,0,2079968.story
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Saturday, April 2, 2011
NY Times article on Medicaid Cuts

nyti.ms
Under last year’s overhaul, Medicaid rolls are expected to grow drastically, but budget woes have states reducing payments to caregivers.
LAFAYETTE, La. — Eight-year-old Draven Smith was expelled from school last year for disruptive behavior, and he is being expelled again this year. But his mother and his pediatrician cannot find a mental health specialist to treat him because he is on Medicaid, and the program, which provides health coverage for the poor, pays doctors so little that many refuse to take its patients.
LAFAYETTE, La. — Eight-year-old Draven Smith was expelled from school last year for disruptive behavior, and he is being expelled again this year. But his mother and his pediatrician cannot find a mental health specialist to treat him because he is on Medicaid, and the program, which provides health coverage for the poor, pays doctors so little that many refuse to take its patients.
Michael Stravato for The New York Times
Dr. Rachel Chatters, right, with Ana Smith, says she begs specialists to see Medicaid patients.
Related
Arizona Asks to Set Fines for Health Risks (April 2, 2011)
Michael Stravato for The New York Times
Ms. Smith said she has tried for more than a year to find a psychiatrist to treat her son Draven, 8, who is on Medicaid.
The problem is common here and across the country, especially as states, scrambling to balance their budgets, look for cuts in Medicaid, which is one of their biggest expenditures. And it presents the Obama administration with a major challenge, since the new federal health care law relies heavily on Medicaid to cover many people who now lack health insurance.
“Having a Medicaid card in no way assures access to care,” said Dr. James B. Aiken, an emergency physician in New Orleans.
Nicole R. Dardeau, 46, a nurse in Opelousas, La., in the heart of Cajun country, can attest to that. She said she could not work because of unbearable pain in her right arm. Doctors have found three herniated discs in her neck and recommended surgery, but cannot find a surgeon to take her as a Medicaid patient.
From her pocketbook, she pulls an insurance card issued by the Louisiana Department of Health and Hospitals.
“My Medicaid card is useless for me right now,” Ms. Dardeau said over lunch. “It’s a useless piece of plastic. I can’t find an orthopedic surgeon or a pain management doctor who will accept Medicaid.”
Medicaid, which is paid for jointly by the federal and state governments, is the subject of an intense debate in Washington over how to make it more efficient as Congress addresses the budget deficit and the growing federal debt.
But for now the administration is counting on Medicaid to play a vital role in expanding access to care under the law President Obama signed last year. The program is already a major presence here, paying for 70 percent of births in Louisiana. State health officials estimate that the Medicaid program will grow by more than 40 percent as a result of the federal health law, with the addition of 467,000 new recipients to 1.1 million now on the rolls.
“How can an already overtaxed Medicaid system handle such a huge influx of people?” asked Dr. Michael A. Felton, a family doctor in Church Point, La., near Lafayette.
It is a question being asked in many states. With the expansion of Medicaid to cover nearly all people under 65 with incomes up to 133 percent of the official poverty level (up to $29,330 a year for a family of four), Medicaid will soon be the nation’s largest insurer. It accounts for almost half of the increase in coverage expected under Mr. Obama’s health law, but has received less attention than other parts of the law regulating private insurance.
The Congressional Budget Office predicts that average monthly Medicaid enrollment, now 56 million, will rise to 71 million by 2016, with another five million people added to the rolls in the five years after that.
Like many states, Louisiana has been struggling with a fiscal crisis. To hold down costs, it has cut Medicaid payments to doctors, dentists, hospitals and other health care providers several times in the last two years. Many providers report that the cuts, taken together, total 15 percent to 20 percent.
Louisiana officials said the cuts were necessary for two reasons: to avoid a budget deficit in the Medicaid program and to comply with a state law that limits Medicaid spending to amounts appropriated by the State Legislature.
For patients like Draven Smith, whose mother said his behavior problems stemmed from attention-deficit hyperactivity disorder, the result is lack of access to doctors, especially specialists. For Draven’s pediatrician, Dr. Rachel Z. Chatters in Lake Charles, La., caring for poor children is a mission. About 80 percent of her patients are on Medicaid. It is, she said, frustrating to beg and plead with other doctors to see Medicaid recipients.
“I devote one afternoon a week, every Wednesday afternoon, to trying to find specialists for my patients — a pulmonologist for children with chronic persistent asthma, a neurologist for children with seizures or developmental delays, a psychiatrist for children with serious mental health problems, a hematologist for patients with sickle cell disease,” Dr. Chatters said.
Draven’s mother, Ana M. Smith, said: “I have tried for more than a year to find a child psychiatrist or psychologist to get Draven evaluated, but the mental health professionals in this area have told me they absolutely do not take Medicaid. If Draven could get the help he needs, I believe it would be unbelievably beneficial to him.”
Some uninsured people will surely receive better care when they gain Medicaid coverage, doctors say. The new health law calls for a temporary two-year increase in Medicaid payments for some primary care services, but this does not affect specialists.
With the expansion of Medicaid in 2014, Louisiana officials expect to enroll three groups: 260,000 newly eligible parents and childless adults, 20,000 parents now eligible but not enrolled and 187,000 adults and children who drop private coverage and sign up for Medicaid.
Bruce D. Greenstein, secretary of the Louisiana Department of Health and Hospitals, said, “We have a hard time finding specialists for Medicaid enrollees.”
Mr. Greenstein said the state expected to improve care and save money by enrolling most Medicaid recipients in managed care, an approach adopted by many states in recent years. In return for fixed monthly fees paid by the state, private health plans would coordinate the care of Medicaid patients, using networks of providers.
In passing the new health law, Congress wanted to make sure current Medicaid recipients would not lose coverage. Under the law, states generally cannot roll back Medicaid eligibility, but they can cut Medicaid in other ways — by reducing provider payment rates or by eliminating optional benefits.
About 20 states cut Medicaid payment rates for doctors last year, according to a survey by the Kaiser Family Foundation. At least 16 governors have proposed rate reductions this year for health care providers.
Gov. John Kitzhaber of Oregon, a Democrat, proposed cutting Medicaid payment rates for doctors, dentists, hospitals and nursing homes by 19 percent. Christine Miles, a spokeswoman for Mr. Kitzhaber, said his priority was to preserve eligibility.
In Illinois, Gov. Pat Quinn, a Democrat, has proposed reducing Medicaid reimbursement rates by 6 percent for hospitals and nursing homes.
Gov. Brian Sandoval of Nevada, a Republican, has proposed cutting Medicaid rates by 5 percent for hospitals, 15 percent for nonprimary care doctors and 25 percent for dentists.
In South Dakota, Gov. Dennis Daugaard, a Republican, just signed a budget bill cutting Medicaid rates for doctors, dentists, hospitals and nursing homes — even primary care physicians and pediatricians.
States have broad discretion in setting Medicaid payment rates. Federal law sets standards, but they are rather vague. Rates are supposed to be “consistent with efficiency, economy and quality of care,” and sufficient to ensure that services are available to Medicaid recipients at least to the same extent as to the general population in the area.
In a few states, Medicaid recipients and providers have blocked cuts or secured higher reimbursement through litigation. But in many states, the promise of equal access remains unfulfilled.
Dr. Kim A. Hardey, an obstetrician-gynecologist in Lafayette, said he received about $1,000 from the Louisiana Medicaid program for providing prenatal care and delivery for a full-term pregnancy, compared with $2,400 from private insurance.
With the expansion of Medicaid eligibility, he said, more of his patients will be on Medicaid, and fewer will have private insurance, which helps offset the financial losses doctors sustain on their Medicaid business.
Already, Dr. Hardey said, many of his patients have jobs with private insurance but switch to Medicaid when they become pregnant, avoiding premiums, deductibles and co-payments.
“Having a Medicaid card in no way assures access to care,” said Dr. James B. Aiken, an emergency physician in New Orleans.
Nicole R. Dardeau, 46, a nurse in Opelousas, La., in the heart of Cajun country, can attest to that. She said she could not work because of unbearable pain in her right arm. Doctors have found three herniated discs in her neck and recommended surgery, but cannot find a surgeon to take her as a Medicaid patient.
From her pocketbook, she pulls an insurance card issued by the Louisiana Department of Health and Hospitals.
“My Medicaid card is useless for me right now,” Ms. Dardeau said over lunch. “It’s a useless piece of plastic. I can’t find an orthopedic surgeon or a pain management doctor who will accept Medicaid.”
Medicaid, which is paid for jointly by the federal and state governments, is the subject of an intense debate in Washington over how to make it more efficient as Congress addresses the budget deficit and the growing federal debt.
But for now the administration is counting on Medicaid to play a vital role in expanding access to care under the law President Obama signed last year. The program is already a major presence here, paying for 70 percent of births in Louisiana. State health officials estimate that the Medicaid program will grow by more than 40 percent as a result of the federal health law, with the addition of 467,000 new recipients to 1.1 million now on the rolls.
“How can an already overtaxed Medicaid system handle such a huge influx of people?” asked Dr. Michael A. Felton, a family doctor in Church Point, La., near Lafayette.
It is a question being asked in many states. With the expansion of Medicaid to cover nearly all people under 65 with incomes up to 133 percent of the official poverty level (up to $29,330 a year for a family of four), Medicaid will soon be the nation’s largest insurer. It accounts for almost half of the increase in coverage expected under Mr. Obama’s health law, but has received less attention than other parts of the law regulating private insurance.
The Congressional Budget Office predicts that average monthly Medicaid enrollment, now 56 million, will rise to 71 million by 2016, with another five million people added to the rolls in the five years after that.
Like many states, Louisiana has been struggling with a fiscal crisis. To hold down costs, it has cut Medicaid payments to doctors, dentists, hospitals and other health care providers several times in the last two years. Many providers report that the cuts, taken together, total 15 percent to 20 percent.
Louisiana officials said the cuts were necessary for two reasons: to avoid a budget deficit in the Medicaid program and to comply with a state law that limits Medicaid spending to amounts appropriated by the State Legislature.
For patients like Draven Smith, whose mother said his behavior problems stemmed from attention-deficit hyperactivity disorder, the result is lack of access to doctors, especially specialists. For Draven’s pediatrician, Dr. Rachel Z. Chatters in Lake Charles, La., caring for poor children is a mission. About 80 percent of her patients are on Medicaid. It is, she said, frustrating to beg and plead with other doctors to see Medicaid recipients.
“I devote one afternoon a week, every Wednesday afternoon, to trying to find specialists for my patients — a pulmonologist for children with chronic persistent asthma, a neurologist for children with seizures or developmental delays, a psychiatrist for children with serious mental health problems, a hematologist for patients with sickle cell disease,” Dr. Chatters said.
Draven’s mother, Ana M. Smith, said: “I have tried for more than a year to find a child psychiatrist or psychologist to get Draven evaluated, but the mental health professionals in this area have told me they absolutely do not take Medicaid. If Draven could get the help he needs, I believe it would be unbelievably beneficial to him.”
Some uninsured people will surely receive better care when they gain Medicaid coverage, doctors say. The new health law calls for a temporary two-year increase in Medicaid payments for some primary care services, but this does not affect specialists.
With the expansion of Medicaid in 2014, Louisiana officials expect to enroll three groups: 260,000 newly eligible parents and childless adults, 20,000 parents now eligible but not enrolled and 187,000 adults and children who drop private coverage and sign up for Medicaid.
Bruce D. Greenstein, secretary of the Louisiana Department of Health and Hospitals, said, “We have a hard time finding specialists for Medicaid enrollees.”
Mr. Greenstein said the state expected to improve care and save money by enrolling most Medicaid recipients in managed care, an approach adopted by many states in recent years. In return for fixed monthly fees paid by the state, private health plans would coordinate the care of Medicaid patients, using networks of providers.
In passing the new health law, Congress wanted to make sure current Medicaid recipients would not lose coverage. Under the law, states generally cannot roll back Medicaid eligibility, but they can cut Medicaid in other ways — by reducing provider payment rates or by eliminating optional benefits.
About 20 states cut Medicaid payment rates for doctors last year, according to a survey by the Kaiser Family Foundation. At least 16 governors have proposed rate reductions this year for health care providers.
Gov. John Kitzhaber of Oregon, a Democrat, proposed cutting Medicaid payment rates for doctors, dentists, hospitals and nursing homes by 19 percent. Christine Miles, a spokeswoman for Mr. Kitzhaber, said his priority was to preserve eligibility.
In Illinois, Gov. Pat Quinn, a Democrat, has proposed reducing Medicaid reimbursement rates by 6 percent for hospitals and nursing homes.
Gov. Brian Sandoval of Nevada, a Republican, has proposed cutting Medicaid rates by 5 percent for hospitals, 15 percent for nonprimary care doctors and 25 percent for dentists.
In South Dakota, Gov. Dennis Daugaard, a Republican, just signed a budget bill cutting Medicaid rates for doctors, dentists, hospitals and nursing homes — even primary care physicians and pediatricians.
States have broad discretion in setting Medicaid payment rates. Federal law sets standards, but they are rather vague. Rates are supposed to be “consistent with efficiency, economy and quality of care,” and sufficient to ensure that services are available to Medicaid recipients at least to the same extent as to the general population in the area.
In a few states, Medicaid recipients and providers have blocked cuts or secured higher reimbursement through litigation. But in many states, the promise of equal access remains unfulfilled.
Dr. Kim A. Hardey, an obstetrician-gynecologist in Lafayette, said he received about $1,000 from the Louisiana Medicaid program for providing prenatal care and delivery for a full-term pregnancy, compared with $2,400 from private insurance.
With the expansion of Medicaid eligibility, he said, more of his patients will be on Medicaid, and fewer will have private insurance, which helps offset the financial losses doctors sustain on their Medicaid business.
Already, Dr. Hardey said, many of his patients have jobs with private insurance but switch to Medicaid when they become pregnant, avoiding premiums, deductibles and co-payments.
A version of this article appeared in print on April 2, 2011, on page A1 of the New York edition.
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Problems with Medicaid Reform in Florida Exposed - FL Moves Forward Anyway
http://www.palmbeachpost.com/health/grading-hmos-medicaid-test-the-state-prepares-to-1360961.html?viewAsSinglePage=true
TALLAHASSEE — Amy Silverman said she feels like a refugee - lucky to have escaped from a frightening place, but at a very high cost.
Silverman, 55, of suburban Delray Beach, fled Broward County last year to break free of Florida's 5-year-old experiment, which placed most Medicaid patients there in managed care.
One county north, helped by aging parents who emptied retirement accounts to ease her move, Silverman said her health has improved.
In Palm Beach County, she's back in conventional Medicaid coverage, which provides her access to the same doctor on a regular basis and to medication the doctor prescribes.
But she worries: The experiment is poised to go statewide.
"I am horrified that the legislature is even considering spreading Medicaid reform to the rest of Florida," said Silverman, who is covered by the program for a psychiatric disability. "This will be horrible and I don't want anyone to go through what I did."
In a bid to squeeze $1 billion out of a recession-wracked state budget, Florida lawmakers are set to push most of the state's 2.9 million Medicaid patients into HMO-style health coverage plans, similar to those launched in Broward, Baker, Clay, Nassau and Duval counties, beginning in 2006.
Republican Gov. Rick Scott and the GOP-led legislature say the statewide effort will inject private-sector efficiency into a government-run system plagued by skyrocketing costs, fraud and poor management.
Others say it will only magnify problems that marred the five-county pilot program.
"We've seen plenty of red flags raised in the pilot counties, like Broward," said Joan Alker, a professor at Georgetown University Health Policy Institute, who has been studying Florida's overhaul. "This is a very vulnerable population. And the more barriers you put up to them receiving care, the more likely that they will not get care or just wind up in emergency rooms."
Silverman said that was her experience.
Enrolled in Broward HMOs for four years, Silverman said she rarely saw the same doctor twice, was placed on different medication by her plan to save money and saw her condition worsen - in part, because of the emotional toll the program took on her.
"It was hell," Silverman said.
"This program doesn't save money," she said. "This was all about making money. The managed care companies just pocketed what they could. Decent doctors dropped out, and the patients were left holding the bag."
Costs rising quickly
The state, though, has learned from these missteps, supporters said.
"We've gone out and heard from people," said Sen. Joe Negron, R-Stuart, the Senate's Health and Human Services budget chief. "We've heard the stories about people bouncing from plan to plan. We've heard about people not being able to see specialists. But we've also heard that the current system is irretrievably broken, and we're starting a new program."
Florida's Medicaid spending is on track to reach $22 billion next year - almost one-third of the state's depleted budget, although the federal government will pay about $12 billion .
Medicaid costs are stoked by the state's prolonged economic slump, with patient rolls climbing, as Floridians losing jobs find themselves without health coverage.
But with state lawmakers struggling to close an almost $3.8 billion budget shortfall, Medicaid has been targeted as a fat, wasteful program in need of a fix.
The House and Senate are advancing different Medicaid overhauls, but both are anchored on managed care.
The House dealt with two dozen proposed amendments to its plan (CS/HB 7107, CS/HB 7109) Tuesday, before giving it preliminary approval, with a final vote expected Thursday. The Senate holds the first hearing on its bill (SB 1972) today, in the Health Regulation Committee.
Scott, who built his $218 million net worth in the health care industry, backs the change.
"The biggest driver in our budget right now is the cost of Medicaid," Scott said. "We need to have a viable safety net for the poor. We've got to come up with a better way to make sure the dollars are spent better."
Supporters point to the success of other states, where more modest overhauls of Medicaid have cut rising costs. Arizona, Georgia and Texas have all reported saving hundreds of millions of dollars through managed care, compared with traditional fee-for-service Medicaid programs.
The underlying premise of the Medicaid revamp is to improve health care services by giving managed care plans authority to design programs that meet the specific needs of patients, improve preventive health services and promote cost-saving competition between plans.
Instead of sick or injured patients showing up in doctor's offices or emergency rooms seeking treatment, with bills paid directly by Medicaid, health management organizations would guide patients into health plans and manage the dollars.
Patients would have to use doctors within a plan's network, and prescriptions would be limited to those on formulary lists approved by the managed care plan.
Most analysts agree for-profit HMOs will dominate the new system, but neither the House nor Senate would require health care providers to be HMOs. Provider service networks operated by hospitals or doctors' groups also are envisioned, along with other forms of managed care.
How much profit?
The House and Senate disagree, for now, on how to divide the state into managed care regions. They also differ on how to hold HMOs and other types of plans accountable for serving patients.
The Senate would force plans to spend 90 percent of the money they receive on care - known in the insurance industry as a "medical loss ratio." The House proposes a profit-sharing formula that would require plans to reimburse the state if they make more than 5 percent in profits.
Michael Garner, president of the Florida Association of Health Plans, said HMOs prefer the House proposal, fearing the Senate approach would add heavy administrative costs.
HMOs work on a modest profit margin, anywhere from 1 percent to 3 percent, he said. But the legislative proposals are built in a way that competition will yield lower cost and better quality, Garner said.
"I think we've all learned from the pilot program," he said.
The five-county experiment prompted a revolving door of managed care plans, patients and doctors said.
Patients, who are predominantly low income, complained of being shuffled from one to another, with HMOs or provider service networks cutting costs by denying or delaying care, and restricting access to medications.
"It was like our names were just tossed into a lottery," said Kendra Garcia, of Miramar, whose three young children receive treatment for emotional and developmental issues. "I've been put into so many different plans, I probably have five different cards right now in my purse."
Obstacles and complexity
Health care providers also struggled. Dr. Lydia Reid, a Broward speech and language pathologist, said patients she treated had to find another doctor when HMOs declined to include her in their networks.
"I was told by the plans, they had enough, they didn't need anyone else in my specialty," Reid said. "But I've also had patients tell me the doctors they're assigned are far away. And they can't get there by bus."
But Rep. Ronald Renuart, R-Ponte Vedra Beach, a doctor, said a reworked Medicaid system holds promise in Florida - if done right.
"The costs go up when the doctor isn't preventing illness, trying to get the patient out of the hospital, isn't managing the patient," Renuart said. "That's uncoordinated care. And that's what we have now in Florida."
Renuart said he hopes that provider service networks run by doctor groups or hospitals emerge as potent competitors to HMOs in the new Florida system. He thinks they can better coordinate a patient's complete care.
Still, he acknowledged a lingering fear: that state Medicaid costs will decline only because the poor, elderly or disabled aren't seeking care in a system that proves too complex to navigate, or denies easy access to treatment.
"I would hope it doesn't come to that," Renuart said.
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TALLAHASSEE — Amy Silverman said she feels like a refugee - lucky to have escaped from a frightening place, but at a very high cost.
Silverman, 55, of suburban Delray Beach, fled Broward County last year to break free of Florida's 5-year-old experiment, which placed most Medicaid patients there in managed care.
One county north, helped by aging parents who emptied retirement accounts to ease her move, Silverman said her health has improved.
In Palm Beach County, she's back in conventional Medicaid coverage, which provides her access to the same doctor on a regular basis and to medication the doctor prescribes.
But she worries: The experiment is poised to go statewide.
"I am horrified that the legislature is even considering spreading Medicaid reform to the rest of Florida," said Silverman, who is covered by the program for a psychiatric disability. "This will be horrible and I don't want anyone to go through what I did."
In a bid to squeeze $1 billion out of a recession-wracked state budget, Florida lawmakers are set to push most of the state's 2.9 million Medicaid patients into HMO-style health coverage plans, similar to those launched in Broward, Baker, Clay, Nassau and Duval counties, beginning in 2006.
Republican Gov. Rick Scott and the GOP-led legislature say the statewide effort will inject private-sector efficiency into a government-run system plagued by skyrocketing costs, fraud and poor management.
Others say it will only magnify problems that marred the five-county pilot program.
"We've seen plenty of red flags raised in the pilot counties, like Broward," said Joan Alker, a professor at Georgetown University Health Policy Institute, who has been studying Florida's overhaul. "This is a very vulnerable population. And the more barriers you put up to them receiving care, the more likely that they will not get care or just wind up in emergency rooms."
Silverman said that was her experience.
Enrolled in Broward HMOs for four years, Silverman said she rarely saw the same doctor twice, was placed on different medication by her plan to save money and saw her condition worsen - in part, because of the emotional toll the program took on her.
"It was hell," Silverman said.
"This program doesn't save money," she said. "This was all about making money. The managed care companies just pocketed what they could. Decent doctors dropped out, and the patients were left holding the bag."
Costs rising quickly
The state, though, has learned from these missteps, supporters said.
"We've gone out and heard from people," said Sen. Joe Negron, R-Stuart, the Senate's Health and Human Services budget chief. "We've heard the stories about people bouncing from plan to plan. We've heard about people not being able to see specialists. But we've also heard that the current system is irretrievably broken, and we're starting a new program."
Florida's Medicaid spending is on track to reach $22 billion next year - almost one-third of the state's depleted budget, although the federal government will pay about $12 billion .
Medicaid costs are stoked by the state's prolonged economic slump, with patient rolls climbing, as Floridians losing jobs find themselves without health coverage.
But with state lawmakers struggling to close an almost $3.8 billion budget shortfall, Medicaid has been targeted as a fat, wasteful program in need of a fix.
The House and Senate are advancing different Medicaid overhauls, but both are anchored on managed care.
The House dealt with two dozen proposed amendments to its plan (CS/HB 7107, CS/HB 7109) Tuesday, before giving it preliminary approval, with a final vote expected Thursday. The Senate holds the first hearing on its bill (SB 1972) today, in the Health Regulation Committee.
Scott, who built his $218 million net worth in the health care industry, backs the change.
"The biggest driver in our budget right now is the cost of Medicaid," Scott said. "We need to have a viable safety net for the poor. We've got to come up with a better way to make sure the dollars are spent better."
Supporters point to the success of other states, where more modest overhauls of Medicaid have cut rising costs. Arizona, Georgia and Texas have all reported saving hundreds of millions of dollars through managed care, compared with traditional fee-for-service Medicaid programs.
The underlying premise of the Medicaid revamp is to improve health care services by giving managed care plans authority to design programs that meet the specific needs of patients, improve preventive health services and promote cost-saving competition between plans.
Instead of sick or injured patients showing up in doctor's offices or emergency rooms seeking treatment, with bills paid directly by Medicaid, health management organizations would guide patients into health plans and manage the dollars.
Patients would have to use doctors within a plan's network, and prescriptions would be limited to those on formulary lists approved by the managed care plan.
Most analysts agree for-profit HMOs will dominate the new system, but neither the House nor Senate would require health care providers to be HMOs. Provider service networks operated by hospitals or doctors' groups also are envisioned, along with other forms of managed care.
How much profit?
The House and Senate disagree, for now, on how to divide the state into managed care regions. They also differ on how to hold HMOs and other types of plans accountable for serving patients.
The Senate would force plans to spend 90 percent of the money they receive on care - known in the insurance industry as a "medical loss ratio." The House proposes a profit-sharing formula that would require plans to reimburse the state if they make more than 5 percent in profits.
Michael Garner, president of the Florida Association of Health Plans, said HMOs prefer the House proposal, fearing the Senate approach would add heavy administrative costs.
HMOs work on a modest profit margin, anywhere from 1 percent to 3 percent, he said. But the legislative proposals are built in a way that competition will yield lower cost and better quality, Garner said.
"I think we've all learned from the pilot program," he said.
The five-county experiment prompted a revolving door of managed care plans, patients and doctors said.
Patients, who are predominantly low income, complained of being shuffled from one to another, with HMOs or provider service networks cutting costs by denying or delaying care, and restricting access to medications.
"It was like our names were just tossed into a lottery," said Kendra Garcia, of Miramar, whose three young children receive treatment for emotional and developmental issues. "I've been put into so many different plans, I probably have five different cards right now in my purse."
Obstacles and complexity
Health care providers also struggled. Dr. Lydia Reid, a Broward speech and language pathologist, said patients she treated had to find another doctor when HMOs declined to include her in their networks.
"I was told by the plans, they had enough, they didn't need anyone else in my specialty," Reid said. "But I've also had patients tell me the doctors they're assigned are far away. And they can't get there by bus."
But Rep. Ronald Renuart, R-Ponte Vedra Beach, a doctor, said a reworked Medicaid system holds promise in Florida - if done right.
"The costs go up when the doctor isn't preventing illness, trying to get the patient out of the hospital, isn't managing the patient," Renuart said. "That's uncoordinated care. And that's what we have now in Florida."
Renuart said he hopes that provider service networks run by doctor groups or hospitals emerge as potent competitors to HMOs in the new Florida system. He thinks they can better coordinate a patient's complete care.
Still, he acknowledged a lingering fear: that state Medicaid costs will decline only because the poor, elderly or disabled aren't seeking care in a system that proves too complex to navigate, or denies easy access to treatment.
"I would hope it doesn't come to that," Renuart said.
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Friday, April 1, 2011
FL Legislature Proposes to require people with developmental disabilities to have managed care
April 1, 2011:
In a dramatic change from the current Medicaid Reform program currently in effect in several counties, the Florida legislature proposes to expand Medicaid Reform (managed care) statewide, and to include people with developmental disabilities in the mandated care. Presently, individuals with developmental disabilities are excluded from the Medicaid reform experiment.
From 2005: "Children with chronic medical conditions, Medicaid-eligible children in foster care, and persons with developmental disabilities (are excluded)." Source: http://www.ncsl.org/default.aspx?tabid=14043
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
In a dramatic change from the current Medicaid Reform program currently in effect in several counties, the Florida legislature proposes to expand Medicaid Reform (managed care) statewide, and to include people with developmental disabilities in the mandated care. Presently, individuals with developmental disabilities are excluded from the Medicaid reform experiment.
From 2005: "Children with chronic medical conditions, Medicaid-eligible children in foster care, and persons with developmental disabilities (are excluded)." Source: http://www.ncsl.org/default.aspx?tabid=14043
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Analysis of Medicaid Reform Bill
From
George Andrew Summary of the Medicaid Reform bill 234 pages long as of 2-17-11.
This is as it relates to APD not including the medical part DD folks would still be subject to.
Executive Summary:
Adds Downs Diagnosis to our program.
Requires monthly payments by Medicaid recipients.
Prevents using a Medicaid service if employer has health care sponsored plan
Requires parental income based fee for DD kids in HCBS waivers.
Require AHCA to apply to modify Federal Waiver & run limited managed care if denied
Requires all Medicaid recipients to be enrolled in Medicaid managed care (Emphasis added)
Prevents Medicaid recipient from enrolling in managed care if has employer sponsored HC.
Plans require Primary care providers to get same Medicare rate
APD required to develop / implement a comprehensive redesign the program
AHCA can impose and collect fees from recipients if approved by Medicare s. 409.906(13)(d)
(Continued on site, at http://specialgathering.wordpress.com/2011/02/24/summary-of-florida-medicaid-reform-bill-as-it-relates-to-apd/)
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Specialgathering's Weblog
We are grateful for the work that George Andrew did in summerizing the Medicaid Reform Bill as it relates to APD. Andrew has more than a decade working with people with disabilities. He worked first for APD and later because a support coordinator, where he is currently serving.George Andrew Summary of the Medicaid Reform bill 234 pages long as of 2-17-11.
This is as it relates to APD not including the medical part DD folks would still be subject to.
Executive Summary:
Adds Downs Diagnosis to our program.
Requires monthly payments by Medicaid recipients.
Prevents using a Medicaid service if employer has health care sponsored plan
Requires parental income based fee for DD kids in HCBS waivers.
Require AHCA to apply to modify Federal Waiver & run limited managed care if denied
Requires all Medicaid recipients to be enrolled in Medicaid managed care (Emphasis added)
Prevents Medicaid recipient from enrolling in managed care if has employer sponsored HC.
Plans require Primary care providers to get same Medicare rate
APD required to develop / implement a comprehensive redesign the program
AHCA can impose and collect fees from recipients if approved by Medicare s. 409.906(13)(d)
(Continued on site, at http://specialgathering.wordpress.com/2011/02/24/summary-of-florida-medicaid-reform-bill-as-it-relates-to-apd/)
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Proposed Medicaid Changes Put Children With Disabilities at Risk
http://www.miamiherald.com/2011/03/29/2140322/dead-wounded-kids-at-center-of.html
“This bill is affecting the most vulnerable and needy people in the state of Florida – those are disabled children,” Maria Tejedor, an Orlando trial attorney, told lawmakers last week. “It creates two doors to the courthouse: One for the haves. And one for the have-nots.”
Read more: Article on Budget Cuts and Danger to Children
“This bill is affecting the most vulnerable and needy people in the state of Florida – those are disabled children,” Maria Tejedor, an Orlando trial attorney, told lawmakers last week. “It creates two doors to the courthouse: One for the haves. And one for the have-nots.”
Read more: Article on Budget Cuts and Danger to Children
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Gov. Scott callsfor deep cuts at agency for disabled - APD
http://cilsfla.blogspot.com/2011/03/gov-scott-to-call-for-deep-cuts-at.html
Gov. Scott to call for deep cuts at agency for disabled - APD
AGENCY FOR PERSONS WITH DISABILITIES
Gov. Scott to call for deep cuts at agency for disabled
.A $170 million deficit in the agency that serves the most needy in Florida has left Gov. Rick Scott with a tough call.
By Marc Caputo
TALLAHASSEE -- Due to a shockingly large deficit, Gov. Rick Scott is planning to invoke his emergency powers and make deep cuts to the rates charged by group homes and case workers who help the developmentally disabled.
Scott could announce a 15 percent rate cut as early as Thursday to close the $170 million budget gap in the Agency for Persons with Disabilities, according to lawmakers who were briefed Wednesday.
The deficit — which exceeds the agency’s spending authority by nearly 20 percent — is partly the legacy of lawsuits, poor planning by the Legislature and a nearly $20 million veto by Scott’s predecessor, Charlie Crist, who starved the program of savings when he refused to trim provider rates last summer.
SYSTEM SHUTDOWN
Those who provide services to the nearly 30,000 Floridians with cerebral palsy, autism and Down Syndrome said they aren’t concerned with the origin of the deficit as much as the effect of deep rate cuts.
“This would be a catastrophe,” said Kingsley Ross, an advocate and lobbyist for Sunrise Community, a Miami-based group home operator.
For the past three years, Ross said, providers have shouldered rate cuts. They’re now operating on the thinnest of margins.
“The system can’t take this,” Ross said. “Eventually, we will have to cut jobs and reduce services.”
Scott’s spokesman, Brian Burgess, said the governor doesn’t want to harm the developmentally disabled. However, he said the state has put off tough choices for too long and the bill is due.
Burgess said paring the budget now will put the state in a better position to pay future expenses on the neediest. “Yes it’s painful,” Burgess said. “But we’re trying to alleviate the pain long term.”
Florida has a constitutional requirement for a balanced budget, but federally created Medicaid-related entitlement programs can go into deficit from time to time if the number of recipients increases or costs for needed services rise.
The Legislature estimated that next year the entire state budget will have a $3.75 billion shortfall. So lawmakers are trimming programs.
Troubled by the deficit in the Agency for Persons with Disabilities, Scott ordered an inquiry. The results of the investigation are scheduled to be released Thursday.
RECIPE FOR DISASTER
The Legislature tried to cut the program for the developmentally disabled last year, but Gov. Crist refused. He vetoed a 2.5 percent provider rate reduction.
Meantime, lawmakers didn’t budget enough money for the program to account for the fact that thousands of recipients had sued to block a system of service reductions and cuts to the program.
When times were flush five years ago, legislators expanded the rolls of the Medicaid program by about 5,000 — a move that brought cheers from advocates for the disabled. They had fretted that about 15,000 developmentally-disabled people were on a waiting list but unable to receive services.
But the waiting list has only grown. Medical costs have increased. But state tax collections plummeted and then flat-lined.
Add all those factors together, and the deficit in the $850 million program for the developmentally disabled is about $170 million, according to the Florida House’s proposed budget. The budget proposes to fix this year’s deficit by shifting money from special accounts. But the Senate offers no such solution, leaving Gov. Scott few choices. Neither he nor his fellow Republicans want to raise taxes to fill the deficit.
Scott’s proposal to reduce rates by 15 percent should save about $34 million. The rest of the deficit would be plugged by shifting agency money and reducing the rates of South Florida providers who get slightly higher reimbursements.
Sen. Joe Negron, a Stuart Republican who chairs the Senate’s health budget committee, and Rep. Matt Hudson, chairman of the House health budget committee, said they were briefed on the plan and support Scott.
“The governor wants to fix a problem,” Negron said. “And this deficit is a big problem.”
Read more: http://www.miamiherald.com/2011/03/30/2142265/gov-scott-to-call-for-deep-cuts.html#ixzz1I8g24xQC
Gov. Scott to call for deep cuts at agency for disabled
.A $170 million deficit in the agency that serves the most needy in Florida has left Gov. Rick Scott with a tough call.
By Marc Caputo
TALLAHASSEE -- Due to a shockingly large deficit, Gov. Rick Scott is planning to invoke his emergency powers and make deep cuts to the rates charged by group homes and case workers who help the developmentally disabled.
Scott could announce a 15 percent rate cut as early as Thursday to close the $170 million budget gap in the Agency for Persons with Disabilities, according to lawmakers who were briefed Wednesday.
The deficit — which exceeds the agency’s spending authority by nearly 20 percent — is partly the legacy of lawsuits, poor planning by the Legislature and a nearly $20 million veto by Scott’s predecessor, Charlie Crist, who starved the program of savings when he refused to trim provider rates last summer.
SYSTEM SHUTDOWN
Those who provide services to the nearly 30,000 Floridians with cerebral palsy, autism and Down Syndrome said they aren’t concerned with the origin of the deficit as much as the effect of deep rate cuts.
“This would be a catastrophe,” said Kingsley Ross, an advocate and lobbyist for Sunrise Community, a Miami-based group home operator.
For the past three years, Ross said, providers have shouldered rate cuts. They’re now operating on the thinnest of margins.
“The system can’t take this,” Ross said. “Eventually, we will have to cut jobs and reduce services.”
Scott’s spokesman, Brian Burgess, said the governor doesn’t want to harm the developmentally disabled. However, he said the state has put off tough choices for too long and the bill is due.
Burgess said paring the budget now will put the state in a better position to pay future expenses on the neediest. “Yes it’s painful,” Burgess said. “But we’re trying to alleviate the pain long term.”
Florida has a constitutional requirement for a balanced budget, but federally created Medicaid-related entitlement programs can go into deficit from time to time if the number of recipients increases or costs for needed services rise.
The Legislature estimated that next year the entire state budget will have a $3.75 billion shortfall. So lawmakers are trimming programs.
Troubled by the deficit in the Agency for Persons with Disabilities, Scott ordered an inquiry. The results of the investigation are scheduled to be released Thursday.
RECIPE FOR DISASTER
The Legislature tried to cut the program for the developmentally disabled last year, but Gov. Crist refused. He vetoed a 2.5 percent provider rate reduction.
Meantime, lawmakers didn’t budget enough money for the program to account for the fact that thousands of recipients had sued to block a system of service reductions and cuts to the program.
When times were flush five years ago, legislators expanded the rolls of the Medicaid program by about 5,000 — a move that brought cheers from advocates for the disabled. They had fretted that about 15,000 developmentally-disabled people were on a waiting list but unable to receive services.
But the waiting list has only grown. Medical costs have increased. But state tax collections plummeted and then flat-lined.
Add all those factors together, and the deficit in the $850 million program for the developmentally disabled is about $170 million, according to the Florida House’s proposed budget. The budget proposes to fix this year’s deficit by shifting money from special accounts. But the Senate offers no such solution, leaving Gov. Scott few choices. Neither he nor his fellow Republicans want to raise taxes to fill the deficit.
Scott’s proposal to reduce rates by 15 percent should save about $34 million. The rest of the deficit would be plugged by shifting agency money and reducing the rates of South Florida providers who get slightly higher reimbursements.
Sen. Joe Negron, a Stuart Republican who chairs the Senate’s health budget committee, and Rep. Matt Hudson, chairman of the House health budget committee, said they were briefed on the plan and support Scott.
“The governor wants to fix a problem,” Negron said. “And this deficit is a big problem.”
Read more: http://www.miamiherald.com/2011/03/30/2142265/gov-scott-to-call-for-deep-cuts.html#ixzz1I8g24xQC
Class action lawsuit challenges waiting list
http://cilsfla.blogspot.com/2011/03/disabled-sue-fl-in-federal-court-over.html
By Jim Saunders
03/28/11 © Health News Florida
Gov. Rick Scott and two state agencies have been hit with a class-action lawsuit alleging Florida has failed to provide needed services to 19,000 disabled people who are stuck on a waiting list.
An advocacy group and five named plaintiffs --- who have developmental disabilities such as mental retardation and cerebral palsy --- filed the lawsuit last week in U.S. District Court in Tallahassee.
The lawsuit centers on a waiting list for what are known as home- and community-based services, which help disabled people live outside of institutions. The lawsuit contends that the state is violating federal law and that some people have been on the waiting list for more than five years.
"Plaintiffs have been placed on waiting lists for enrollment ... where they languish for years without services, thereby placing them at risk of institutionalization and regression of skills and therapies learned from educational programs,'' said the lawsuit, filed by lawyers for the advocacy group, Disability Rights Florida.
The suit names as defendants Scott, Agency for Health Care Administration Secretary Elizabeth Dudek and interim Agency for Persons with Disabilities director Brian Vaughan.
Shelisha Coleman, an AHCA spokeswoman, said in an e-mail this morning that her agency does not comment on pending litigation. Health News Florida was also seeking comment from the governor's office and the Agency for Persons with Disabilities.
The waiting list is part of a long-running debate in Tallahassee about the home- and community-based services program. Lawmakers and the Agency for Persons with Disabilities --- which manages much of the program --- have taken a series of steps in recent years to try to hold down rising costs, including limiting certain services.
Despite those attempts, the program has run large deficits. A House budget proposal released last week, for example, includes $169 million to cover a deficit this year.
The lawsuit focuses on people who are not able to fully take care of themselves and need varying levels of services to live in their communities. In many cases, the people live with family members.
But the lawsuit says that only people considered in "crisis" have been taken off the waiting list during the past five years and been added to the program. That can happen, for instance, when people become homeless or are considered dangers to themselves or others.
The lawsuit alleges Florida is violating the American with Disabilities Act, which requires efforts to integrate disabled people into communities. Federal law also is involved because the home- and community-based services program is run through what is known as a "waiver" to the Medicaid program.
Capital Bureau Chief Jim Saunders can be reached at 850-228-0963 begin_of_the_skype_highlighting
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
By Jim Saunders
03/28/11 © Health News Florida
Gov. Rick Scott and two state agencies have been hit with a class-action lawsuit alleging Florida has failed to provide needed services to 19,000 disabled people who are stuck on a waiting list.
An advocacy group and five named plaintiffs --- who have developmental disabilities such as mental retardation and cerebral palsy --- filed the lawsuit last week in U.S. District Court in Tallahassee.
The lawsuit centers on a waiting list for what are known as home- and community-based services, which help disabled people live outside of institutions. The lawsuit contends that the state is violating federal law and that some people have been on the waiting list for more than five years.
"Plaintiffs have been placed on waiting lists for enrollment ... where they languish for years without services, thereby placing them at risk of institutionalization and regression of skills and therapies learned from educational programs,'' said the lawsuit, filed by lawyers for the advocacy group, Disability Rights Florida.
The suit names as defendants Scott, Agency for Health Care Administration Secretary Elizabeth Dudek and interim Agency for Persons with Disabilities director Brian Vaughan.
Shelisha Coleman, an AHCA spokeswoman, said in an e-mail this morning that her agency does not comment on pending litigation. Health News Florida was also seeking comment from the governor's office and the Agency for Persons with Disabilities.
The waiting list is part of a long-running debate in Tallahassee about the home- and community-based services program. Lawmakers and the Agency for Persons with Disabilities --- which manages much of the program --- have taken a series of steps in recent years to try to hold down rising costs, including limiting certain services.
Despite those attempts, the program has run large deficits. A House budget proposal released last week, for example, includes $169 million to cover a deficit this year.
The lawsuit focuses on people who are not able to fully take care of themselves and need varying levels of services to live in their communities. In many cases, the people live with family members.
But the lawsuit says that only people considered in "crisis" have been taken off the waiting list during the past five years and been added to the program. That can happen, for instance, when people become homeless or are considered dangers to themselves or others.
The lawsuit alleges Florida is violating the American with Disabilities Act, which requires efforts to integrate disabled people into communities. Federal law also is involved because the home- and community-based services program is run through what is known as a "waiver" to the Medicaid program.
Capital Bureau Chief Jim Saunders can be reached at 850-228-0963 begin_of_the_skype_highlighting
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Payments to group homes slashed 15% by Florida legislature
State moves to slash payments for group homes, rehabilitation organizations for people with disabilities
By Bill Cotterell
Florida Capital Bureau
Faced with a $170 million deficit for services to the severely disabled, the state moved to slash payments by 15 percent for group homes and other rehabilitation organizations in the Medicaid waiver program Thursday.
Gov. Rick Scott said the cut was necessary to put the Agency for Persons with Disability on a path to fiscal stability. But a representative of the medical and rehabilitative organizations caring for about 35,000 people with disabilities said it will mean job cuts that will seriously reduce services.
APD and the Agency for Health Care Administration submitted an emergency plan to cut payments to providers by 15 percent for the next three months. APD received $805 million for the current year but state law requires agencies to make adjustments when they foresee a shortfall in their legislative appropriations.
"As we know, we've got to make sure we don't waste dollars and we have to get great care," Scott said. "What we're doing, I think is the path to long-term viability of that agency."
But the Florida Association of Rehabilitation Facilities said state spending for developmental disabilities has fallen from $961.5 million in Fiscal 2007-08 to $805 million this year. Programs have been running deficits for the past two fiscal years, patched by fund transfers.
Kingsley Ross, a lobbyist for providers, said about 5,000 patients were added to APD programs in 2005 but the Legislature never budgeted for their care.
APD chief of staff Bryan Vaughan said the emergency cuts, through the end of the fiscal year on June 30, were "necessary to comply with statutory obligations so that we are not forced to eliminate services to this vulnerable population." He said APD will protect "the health and safety of Floridians with developmental disabilities while living within our budget."
Ross said most group homes and other facilities treating people with Down syndrome, spina bifida and other profound disabilities are managing on 1 or 2 percent margins. He said a 15 percent cut would be devastating.
"Since our business is a people business, 80 percent of the money we spend is on people and benefits -- and we’re not talking rich benefits, either," he said. "When you take that much money away, we have no choice but to take it out of salaries, reducing staff. There is a point at which you can’t provide these services safely. It requires a degree of attention that requires a certain level of staffing."
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By Bill Cotterell
Florida Capital Bureau
Faced with a $170 million deficit for services to the severely disabled, the state moved to slash payments by 15 percent for group homes and other rehabilitation organizations in the Medicaid waiver program Thursday.
Gov. Rick Scott said the cut was necessary to put the Agency for Persons with Disability on a path to fiscal stability. But a representative of the medical and rehabilitative organizations caring for about 35,000 people with disabilities said it will mean job cuts that will seriously reduce services.
APD and the Agency for Health Care Administration submitted an emergency plan to cut payments to providers by 15 percent for the next three months. APD received $805 million for the current year but state law requires agencies to make adjustments when they foresee a shortfall in their legislative appropriations.
"As we know, we've got to make sure we don't waste dollars and we have to get great care," Scott said. "What we're doing, I think is the path to long-term viability of that agency."
But the Florida Association of Rehabilitation Facilities said state spending for developmental disabilities has fallen from $961.5 million in Fiscal 2007-08 to $805 million this year. Programs have been running deficits for the past two fiscal years, patched by fund transfers.
Kingsley Ross, a lobbyist for providers, said about 5,000 patients were added to APD programs in 2005 but the Legislature never budgeted for their care.
APD chief of staff Bryan Vaughan said the emergency cuts, through the end of the fiscal year on June 30, were "necessary to comply with statutory obligations so that we are not forced to eliminate services to this vulnerable population." He said APD will protect "the health and safety of Floridians with developmental disabilities while living within our budget."
Ross said most group homes and other facilities treating people with Down syndrome, spina bifida and other profound disabilities are managing on 1 or 2 percent margins. He said a 15 percent cut would be devastating.
"Since our business is a people business, 80 percent of the money we spend is on people and benefits -- and we’re not talking rich benefits, either," he said. "When you take that much money away, we have no choice but to take it out of salaries, reducing staff. There is a point at which you can’t provide these services safely. It requires a degree of attention that requires a certain level of staffing."
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Caregivers and the new federal heath care law
Material on the Federal Health Care law and its benefits to caregivers.
Visit http://familiesusa2.org/assets/pdfs/health-reform/Good-News-for-Caregivers.pdf
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Visit http://familiesusa2.org/assets/pdfs/health-reform/Good-News-for-Caregivers.pdf
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
Representative Saunders' letter re cuts to services
Please find attached a short letter sent yesterday by Rep. Ron Saunders to members of the Miami-Dade legislative delegation in the Florida House of Representatives.
The letter concerns legislation led by Rep. Matt Hudson that cuts services to persons with developmental disabilities.
Representative Saunders included a copy of PCB HCAS 11-01 with his correspondence.
The letter concerns legislation led by Rep. Matt Hudson that cuts services to persons with developmental disabilities.
Representative Saunders included a copy of PCB HCAS 11-01 with his correspondence.
Below is the text of the letter.
March 31, 2011
Dear fellow Members of the Miami-Dade Delegation,
As one of only two members of the Miami-Dade Delegation on the Appropriations Committee, I would like to bring House Bill 5301 by Representative Matt Hudson to your attention. This bill drastically cuts services to our most vulnerable citizens by reducing the geographic differential rate given to providers of residential habilitation services to persons with developmental disabilities in Miami-Dade County. I voted no on this bill and I encourage you to do the same to protect these vital services. Compounded with Governor Scott’s plans to cut services, this is a potential health and safety issue for individuals with developmental disabilities who depend on providers.
Thank you for joining me in protecting those who cannot protect themselves.
Sincerely,
Ron Saunders
State Representative
District 120
Mark Hollis
Communications DirectorDemocratic Office, Florida House of Representatives
tel: 850-488-9622 | cell: 850-385-8573 | email: mark.hollis@myfloridahouse.gov
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Communications DirectorDemocratic Office, Florida House of Representatives
tel: 850-488-9622 | cell: 850-385-8573 | email: mark.hollis@myfloridahouse.gov
Visit FLHOUSEDEMS| Find on Twitter |
Join our listserv, and visit us on Facebook (adaexpertise). Send us a message, at mdubin@pobox.com.
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